Quality of Life in Autistic Children: Discrepancies Between Self- and Caregiver-Proxy Reports and Associations With Individual Characteristics

Autism Research (2025) Authors: Emily Skaletski, Rebekah Rodriguez, Sharon Gartland, Karla Ausderau, Lauren Bishop, James Li, Brittany Travers Abstract: Quality of life (QoL) is important for everyone and has been identified as a priority for …

Public Health Nurse Partnerships to Advance Environmental Justice and Heart Health in a Black Community

Environmental Justice (2024) Authors: Jessica LeClair, Fatih Kunkul, Hannah Olson-Williams, Rose Fredrickson, Sarah Hughes, Katie Peterson, Palee Yang, and Linda D. Oakley Abstract: There is a robust correlation between environmental exposures and unjust cardiovascular outcomes among Black populations. Community-based public health …

“I Want to Know Everything …  ”: The Return of Research Results and the Importance of Transparency in the Acceptability of Lumbar Punctures for African American Older Adults

Journal of Alzheimer’s Disease (2023) Authors: Susan Racine Passmore, Colin Longhurst, Abigail Gerbitz, Gina Green-Harris, Nia Norris, Dorothy Farrar Edwards Abstract: Although African Americans experience the highest risk of Alzheimer’s disease (AD), they are dramatically underrepresented in preclinical biomarker research. This is especially true …

Engaging Community Doulas with a Remote Postpartum Hypertension Program for Black Persons: A Qualitative Study

American Journal of Obstetrics & Gynecology (2024) Authors: Elizabeth Albert, Megan Knutson Sinaise, Tia Murray, Nicole Thomas, Kathleen Wannemuehler, Susan Passmore, Kara K. Hoppe Abstract: Perform a qualitative assessment of the postpartum (PP) person’s experiences with addition of a community-based doula …

“My Blood, You Know, My Biology Being out There…”: Consent and Participant Control of Biological Samples

Journal of Empirical Research on Human Research Ethics (2024) Authors: Susan Racine Passmore, Abigail Gerbitz, Gregory R. Hancock, Laura Evans, Gina Green-Harris, Dorothy Farrar Edwards, Tyson Jackson, and Stephen B. Thomas Abstract: The widespread and persistent underrepresentation of groups experiencing health disparities in research involving biospecimens is a barrier …

Just Research: Evaluation Findings of an Educational Program to Promote Inclusive Research Among Investigators and Research Staff

Journal of Clinical and Translational Science (2024) Authors: Susan Racine Passmore, Gina Green-Harris, Peter Kirschmann, Amarette Filut, Katrina Phelps, Mariana Garcia, Dorothy Farrar Edwards Abstract: Educational opportunities for investigators and staff to promote inclusive research …

Investigating Potential Disparities in Clinical Trial Eligibility and Enrollment at an NCI-designated Comprehensive Cancer Center

Cancer Medicine (2023) Authors: Monica Patel, Jennifer Shah, Floyd John Brinley IV, Paul Abrahamse, Christine Veenstra, Anne Schott Abstract: Although barriers to trial accrual are well-reported, few studies have explored trial eligibility and trial offers as potential drivers of disparities in …