Category: Health Care

Quality of Life in Autistic Children: Discrepancies Between Self- and Caregiver-Proxy Reports and Associations With Individual Characteristics

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Autism Research (2025) Authors: Emily Skaletski, Rebekah Rodriguez, Sharon Gartland, Karla Ausderau, Lauren Bishop, James Li, Brittany Travers Abstract: Quality of life (QoL) is important for everyone and has been identified as a priority for autistic people. However, studies typically focus on caregiver-proxy-reported QoL and its related individual characteristics, even though self- and caregiver-proxy-reported QoL …

Intergenerational Occupational Mobility and Health in the United States

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Social Science & Medicine (2025) Authors: Hyeyun Jeong, Jiahui Xu, John Robert Warren, Liying Luo, Eric Grodsky, Chandra Muller Abstract: Does intergenerational occupational mobility impact health and well-being net of occupational origins and destinations? Are the net effects of mobility homogeneous across demographic subgroups? Using data from High School and Beyond cohort (HS&B:80) and two …

Childcare Facility Closure and Exacerbated Gender Inequality in Parenting Time during the COVID-19 Pandemic

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Sociology (2024) Authors: Ran Liu and Siyun Gan Abstract: The unprecedented large-scale childcare facility closure during the COVID-19 pandemic led to a dramatic increase in the childcare burden at home, which is shouldered disproportionately by women more than men. Leveraging anonymized mobile tracking data and nationally representative time-use survey data from the USA, this study adopts a …

Latent Class Analysis of Heart Health in a Marginalized Black Community

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American Heart Association Journals (2023) Authors: Linda D. Oakley, Wan-Chin Kuo, Rick P. Voland, Hannah Olson-Williams, Faith Kunkul, and Roger L. Brown Abstract: Mounting evidence associates Black American’s experiences of chronic stress with younger age hypertension (HTN) onset, higher prevalence rates, and poorer treatment outcomes. Epigenetic research findings attribute these trends to DNA methylation, commonly referred to …

Public Health Nurse Partnerships to Advance Environmental Justice and Heart Health in a Black Community

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Environmental Justice (2024) Authors: Jessica LeClair, Fatih Kunkul, Hannah Olson-Williams, Rose Fredrickson, Sarah Hughes, Katie Peterson, Palee Yang, and Linda D. Oakley Abstract: There is a robust correlation between environmental exposures and unjust cardiovascular outcomes among Black populations. Community-based public health nurses (CBPHNs) can effectively implement environmental justice interventions to promote heart health. A collaboration of interdisciplinary researchers and CBPHNs aimed …

“I Want to Know Everything …  ”: The Return of Research Results and the Importance of Transparency in the Acceptability of Lumbar Punctures for African American Older Adults

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Journal of Alzheimer’s Disease (2023) Authors: Susan Racine Passmore, Colin Longhurst, Abigail Gerbitz, Gina Green-Harris, Nia Norris, Dorothy Farrar Edwards Abstract: Although African Americans experience the highest risk of Alzheimer’s disease (AD), they are dramatically underrepresented in preclinical biomarker research. This is especially true for studies involving lumbar puncture as it may involve more perceived risk even for those participants who are otherwise supportive …

Engaging Community Doulas with a Remote Postpartum Hypertension Program for Black Persons: A Qualitative Study

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American Journal of Obstetrics & Gynecology (2024) Authors: Elizabeth Albert, Megan Knutson Sinaise, Tia Murray, Nicole Thomas, Kathleen Wannemuehler, Susan Passmore, Kara K. Hoppe Abstract: Perform a qualitative assessment of the postpartum (PP) person’s experiences with addition of a community-based doula in an existing remote patient monitoring (RPM) program for PP hypertension (HTN).Qualitative study to explore Black PP person’s experience with …

“My Blood, You Know, My Biology Being out There…”: Consent and Participant Control of Biological Samples

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Journal of Empirical Research on Human Research Ethics (2024) Authors: Susan Racine Passmore, Abigail Gerbitz, Gregory R. Hancock, Laura Evans, Gina Green-Harris, Dorothy Farrar Edwards, Tyson Jackson, and Stephen B. Thomas Abstract: The widespread and persistent underrepresentation of groups experiencing health disparities in research involving biospecimens is a barrier to scientific knowledge and advances in health equity. To ensure that all groups have the opportunity to participate in research …

Just Research: Evaluation Findings of an Educational Program to Promote Inclusive Research Among Investigators and Research Staff

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Journal of Clinical and Translational Science (2024) Authors: Susan Racine Passmore, Gina Green-Harris, Peter Kirschmann, Amarette Filut, Katrina Phelps, Mariana Garcia, Dorothy Farrar Edwards Abstract: Educational opportunities for investigators and staff to promote inclusive research practices are a critical piece of the effort to increase diversity in study participation and promote health equity. However, few …

Investigating Potential Disparities in Clinical Trial Eligibility and Enrollment at an NCI-designated Comprehensive Cancer Center

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Cancer Medicine (2023) Authors: Monica Patel, Jennifer Shah, Floyd John Brinley IV, Paul Abrahamse, Christine Veenstra, Anne Schott Abstract: Although barriers to trial accrual are well-reported, few studies have explored trial eligibility and trial offers as potential drivers of disparities in cancer clinical trial enrollment. We identified patients with gastrointestinal (GI) or head/neck (HN) malignancies who were seen as new patients …