University of Wisconsin–Madison

Tag: Lauren Bishop

Risk of dementia and related neurocognitive disorders among autistic and non-autistic older adults: Role of established risk factors

Posted on

Age and Ageing (2026) Authors: Melica Nikahd, Madison Hyer, Beth Wolf, Brian Patterson, Lauren Bishop, Brittany Hand Abstract:  Background Neurocognitive disorders (i.e. dementia) are a leading cause of cognitive decline and loss of independence among older adults. While reported rates are higher among autistic adults, it is unclear whether this disparity persists after accounting for …

Mental Health Outcomes Associated with Applied Behavior Analysis in a US National Sample of Privately Insured Autistic Youth

Posted on

Autism (2025) Authors: Nahime Aguirre Mtanous, Jamie Koenig, Melica Nikahd, Sarah Effertz, Sal Silinonte, J. Madison Hyer, Brittany Hand, Lauren Bishop Abstract: Autistic youth often receive applied behavior analysis (ABA) therapy, but some autistic adults who had ABA as youth say it harmed their mental health as adults. We looked at the relationship between ABA …

Quality of Life in Autistic Children: Discrepancies Between Self- and Caregiver-Proxy Reports and Associations With Individual Characteristics

Posted on

Autism Research (2025) Authors: Emily Skaletski, Rebekah Rodriguez, Sharon Gartland, Karla Ausderau, Lauren Bishop, James  Li, Brittany Travers Abstract: Quality of life (QoL) is important for everyone and has been identified as a priority for autistic people. However, studies typically focus on caregiver-proxy-reported QoL and its related individual characteristics, even though self- and caregiver-proxy-reported QoL …

Mortality Rate and Age of Death Among Medicare-Enrolled Autistic Older Adults

Posted on

Research in Autism Spectrum Disorders (2023) Authors: Morgan Krantz, Djhenne Dalmacy, Lauren Bishop, Madison Hyer, Brittany N. Hand Abstract: An emerging body of evidence suggests that autistic people are at greater risk for mortality than non-autistic people. Yet, relatively little is known about mortality rates among autistic people during older adulthood (i.e., age 65 or older). We …

“I’m dealing with a health care system that doesn’t get it”: Barriers and Facilitators to Inclusive Healthcare for Autistic Adults

Posted on

Autism (2024) Authors: Kiley J. McLean, Meghan Hass, Jamie Koenig, Megan Horvath, Mariah Vigil, Nicole E. Werner, Lauren Bishop Abstract: Emerging research points to high rates of major psychiatric disorders and chronic medical conditions among autistic adults. However, the unique healthcare needs of autistic adults are often overlooked, perhaps due to limitations in population-level surveillance and widespread …

Evaluation of Equity in Hospice Care Utilization Among Medicare-Enrolled Autistic Older Adults

Posted on

Autism in Adulthood (2025) Authors: Lauren Bishop, Melica Nikahd, Bethany J. Wolf, Brian W. Patternson, Anne Longo, Deondray Radford, Emma Krantz, J. Madison Hyer, Brittany N. Hand Abstract: Better identification of autistic people and increased life expectancy for people with intellectual and developmental disabilities have given rise to an urgent need to better understand end-of-life care in …

Using National Survey Data to Estimate Healthcare Communication Disparities for Adults With Intellectual and Developmental Disabilities

Posted on

Journal of Intellectual Disability Research (2025) Authors: Jamie Koenig, Lauren Bishop Abstract: Previous studies have identified considerable health outcome disparities for adults with intellectual and developmental disabilities (IDD) as well as poor or ineffective communication between adults with IDD and their medical providers. Using National Health Interview Survey (NHIS) data, this paper uses logistic regression to estimate …

Health Disparities Persist for Adults with Developmental Disabilities: NHIS insights, 1999-2018

Posted on

Health Affairs Scholar (2025) Authors: Kiley J. McLean, Jamie Koenig, Samara Wolpe, Wei Song, Lauren Bishop Abstract: This study assesses changes in self-reported health and healthcare status among adults with intellectual and developmental disabilities (I/DD) over the past 20 years, utilizing data from the National Health Interview Survey. We conducted a cross-sectional analysis of 601 464 adults …

Challenging Neurotypical Norms: Autistic Adults’ Understandings of Health

Posted on

Autism (2025) Authors: Jamie Koenig, Kiley J. McLean, Meghan Haas, Megan Horvath, Mariah Vigil, Nahime G. Aguirre Mtanous, Sarah Effertz, Lauren Bishop Abstract: This study examined how autistic adults conceptualize health and whether their conceptualizations differed substantively from those of their emergency contacts (people who helped with health or healthcare management). We conducted semi-structured interviews with 10 dyads …

Quality of Life in Autistic Children: Discrepancies Between Self- and Caregiver-Proxy Reports and Associations With Individual Characteristics

Posted on

Autism Research (2025) Authors: Emily Skaletski, Rebekah Rodriguez, Sharon Gartland, Karla Ausderau, Lauren Bishop, James Li, Brittany Travers Abstract: Quality of life (QoL) is important for everyone and has been identified as a priority for autistic people. However, studies typically focus on caregiver-proxy-reported QoL and its related individual characteristics, even though self- and caregiver-proxy-reported QoL …