Redefining How to Communicate Treatment Options May Facilitate Equitable Clinical Trial Enrollment

Oncology Live (2025) Authors: Samantha Vuong and Monica A. Patel Abstract: Clinical trial enrollment among underserved groups remains low, affecting generalizability and equitable access to cancer treatments. Barriers to participation include patient-physician communication and implicit …

“I’m dealing with a health care system that doesn’t get it”: Barriers and Facilitators to Inclusive Healthcare for Autistic Adults

Autism (2024) Authors: Kiley J. McLean, Meghan Hass, Jamie Koenig, Megan Horvath, Mariah Vigil, Nicole E. Werner, Lauren Bishop Abstract: Emerging research points to high rates of major psychiatric disorders and chronic medical conditions among autistic adults. …

Evaluation of Equity in Hospice Care Utilization Among Medicare-Enrolled Autistic Older Adults

Autism in Adulthood (2025) Authors: Lauren Bishop, Melica Nikahd, Bethany J. Wolf, Brian W. Patternson, Anne Longo, Deondray Radford, Emma Krantz, J. Madison Hyer, Brittany N. Hand Abstract: Better identification of autistic people and increased life expectancy …

Using National Survey Data to Estimate Healthcare Communication Disparities for Adults With Intellectual and Developmental Disabilities

Journal of Intellectual Disability Research (2025) Authors: Jamie Koenig, Lauren Bishop Abstract: Previous studies have identified considerable health outcome disparities for adults with intellectual and developmental disabilities (IDD) as well as poor or ineffective communication between adults …

Health Disparities Persist for Adults with Developmental Disabilities: NHIS insights, 1999-2018

Health Affairs Scholar (2025) Authors: Kiley J. McLean, Jamie Koenig, Samara Wolpe, Wei Song, Lauren Bishop Abstract: This study assesses changes in self-reported health and healthcare status among adults with intellectual and developmental disabilities (I/DD) over the …

The Development and Pilot Testing of a Minority Stress Psychoeducation Tool for Transgender and Nonbinary People

Transgender Health (2024) Authors: Stephanie L. Budge, Elliot A. Tebbe, Diana Love Abstract: In this study, we aimed to develop and test the acceptability of a minority stress psychoeducation tool for transgender and nonbinary (TNB) people. Patients in …

Will We Have a Match? Observations from Decision Making Conversations Between Hematologists and White and Black Patients Considering Allogeneic Stem Cell Transplant

Journal of Clinical Oncology  (2023) Authors: Thorunn Halldora Thordardottir, Rachel A. Rodenbach, Toby Christopher Campbell Abstract: Allogeneic stem cell transplant (alloSCT) is the only treatment associated with cure for high-risk myelodysplastic syndrome (MDS), but carries substantial risks. …

The Healing Through Ongoing Psychological Empowerment Telehealth Intervention With Two Spirit, Transgender, and Nonbinary Clients of Color in the United States: Open Clinical Trial Feasibility and Implementation Analysis

JMIR Formative Research (2025) Authors: Stephanie Lynne Budge, Elliot Tebbe, Joonwoo Lee, Sergio Domínguez Jr., Em Matsuno, Louis Lindley Abstract: Background: There is a notable lack of psychotherapeutic services tailored to the needs of Two …