Quality of Life in Autistic Children: Discrepancies Between Self- and Caregiver-Proxy Reports and Associations With Individual Characteristics

Autism Research (2025) Authors: Emily Skaletski, Rebekah Rodriguez, Sharon Gartland, Karla Ausderau, Lauren Bishop, James  Li, Brittany Travers Abstract: Quality of life (QoL) is important for everyone and has been identified as a priority for …

Using National Survey Data to Estimate Healthcare Communication Disparities for Adults With Intellectual and Developmental Disabilities

Journal of Intellectual Disability Research (2025) Authors: Jamie Koenig, Lauren Bishop Abstract: Previous studies have identified considerable health outcome disparities for adults with intellectual and developmental disabilities (IDD) as well as poor or ineffective communication between adults …

Health Disparities Persist for Adults with Developmental Disabilities: NHIS insights, 1999-2018

Health Affairs Scholar (2025) Authors: Kiley J. McLean, Jamie Koenig, Samara Wolpe, Wei Song, Lauren Bishop Abstract: This study assesses changes in self-reported health and healthcare status among adults with intellectual and developmental disabilities (I/DD) over the …

Challenging Neurotypical Norms: Autistic Adults’ Understandings of Health

Autism (2025) Authors: Jamie Koenig, Kiley J. McLean, Meghan Haas, Megan Horvath, Mariah Vigil, Nahime G. Aguirre Mtanous, Sarah Effertz, Lauren Bishop Abstract: This study examined how autistic adults conceptualize health and whether their conceptualizations differed substantively from …

A Longitudinal Investigation of Trans and Nonbinary Youth Identity: Individual Processes and Family Agreement in the Trans Teen and Family Narratives Project

LGBTQ+ Family: An Interdisciplinary Journal (2025) Authors: Stephanie L. Budge, Yusuf Barburoğlu, Siyan Gao, Dean Dvorak, Gideon Elliott, Sydney Gilchrist, Savannah Lynn, Eli G. Godwin, Sabra L. Katz-Wise Abstract: Few studies have focused on transgender and nonbinary youths’ …

The “Best of Both Worlds”: Building a Community-Academic Partnership for Research with Legal System-Impacted Individuals

American Journal of Community (2025) Authors: Talia R. Cohen, Karen Reece, Aaron Hicks, Deborah Mejchar, Carmen Alonso, Anthony Cooper, Michael R. Koenigs, Daniel W. Grupe Abstract: Equitable community‐academic research partnerships provide an innovative way to advance health outcomes …