University of Wisconsin–Madison
Proceedings of the ACM Human-Computer Interaction (2025) Authors: Corey Jackson, Carsten Østerlund, Anand Vamsi, Alexander O. Smith, Karsten Crowston Abstract: We explore patterns of interaction with different learning resources (e.g., forums) to predict learning outcomes in an online citizen science project called Gravity Spy. To explore how volunteers engage with and benefit from these resources, …
Sociological Science (2023) Authors: Ariela Schachter, John Kuk, Max Besbris, Garrett Pekarek Abstract: Increasing Spanish fluency in the United States likely shapes ethnoracial group boundaries and inequality. We study a key site for group boundary negotiations—the housing market—where Spanish usage may represent a key source of information exchange between landlords and prospective renters. Specifically, we examine the use …
Qualitative Sociology (2024) Authors: Anna Rhodes, Max Besbris Abstract: Drawing on the human ecology framework, which describes social structure as dynamic and social action as environmentally contingent, this article examines behavior and attitudes around accepting help after disaster. Through two years of longitudinal in-depth interviews with 59 households in one community whose homes flooded during Hurricane Harvey, …
RSF: The Russel Sage Foundation Journal of Social Sciences (2024) Authors: Max Besbris, Sadie Dempsey, Brian McCabe, Eva Rosen Abstract: This article uses a subsample of low-income American Voices Project respondents who rent their homes to examine how households coped with housing insecurity at the onset of the COVID-19 pandemic. First, some renters reported more housing stability because …
Research in Autism Spectrum Disorders (2023) Authors: Morgan Krantz, Djhenne Dalmacy, Lauren Bishop, Madison Hyer, Brittany N. Hand Abstract: An emerging body of evidence suggests that autistic people are at greater risk for mortality than non-autistic people. Yet, relatively little is known about mortality rates among autistic people during older adulthood (i.e., age 65 or older). We …
Autism (2024) Authors: Kiley J. McLean, Meghan Hass, Jamie Koenig, Megan Horvath, Mariah Vigil, Nicole E. Werner, Lauren Bishop Abstract: Emerging research points to high rates of major psychiatric disorders and chronic medical conditions among autistic adults. However, the unique healthcare needs of autistic adults are often overlooked, perhaps due to limitations in population-level surveillance and widespread …
Autism in Adulthood (2025) Authors: Lauren Bishop, Melica Nikahd, Bethany J. Wolf, Brian W. Patternson, Anne Longo, Deondray Radford, Emma Krantz, J. Madison Hyer, Brittany N. Hand Abstract: Better identification of autistic people and increased life expectancy for people with intellectual and developmental disabilities have given rise to an urgent need to better understand end-of-life care in …
Journal of Intellectual Disability Research (2025) Authors: Jamie Koenig, Lauren Bishop Abstract: Previous studies have identified considerable health outcome disparities for adults with intellectual and developmental disabilities (IDD) as well as poor or ineffective communication between adults with IDD and their medical providers. Using National Health Interview Survey (NHIS) data, this paper uses logistic regression to estimate …
Health Affairs Scholar (2025) Authors: Kiley J. McLean, Jamie Koenig, Samara Wolpe, Wei Song, Lauren Bishop Abstract: This study assesses changes in self-reported health and healthcare status among adults with intellectual and developmental disabilities (I/DD) over the past 20 years, utilizing data from the National Health Interview Survey. We conducted a cross-sectional analysis of 601 464 adults …
Autism (2025) Authors: Jamie Koenig, Kiley J. McLean, Meghan Haas, Megan Horvath, Mariah Vigil, Nahime G. Aguirre Mtanous, Sarah Effertz, Lauren Bishop Abstract: This study examined how autistic adults conceptualize health and whether their conceptualizations differed substantively from those of their emergency contacts (people who helped with health or healthcare management). We conducted semi-structured interviews with 10 dyads …